“Bread” Cancer, misdiagnosis journal

In June of 2017 I begin feeling unwell, at the time I had vague symptoms loose stools, intermittent abdominal pain and photo-sensitivity. Then loss of appetite, I embraced it at the time. I needed to lose a “few” pounds. I had thyroid cancer in 2012 thus a life long hyperthyroidism issue.

I had started new medication in November 2016, Effexor and June 2017, Naltroxone. So convinced my self it was temporary side effects. The symptoms continued the photo sensitivity increased in severity. I thought I had something in my eyes at first, burning and water running like a faucet whenever I see any sunlight or ray of light. Back then it was only happening once in a while when I was driving, I would get “attacks” and have to pull over, out of know where the photo-sensitivity would hit me, and I could not see, my eyes would burn and I would end up with a cloth or tissue full of water/tears that blinded me.

The symptoms continued to get worse and I sought out my family physician, a few specialists and even therapy thinking it was in my head. The later because the tests were coming back normal. I was continuing to lose weight, food disgusting to me, bones aching, smell severely diminished, hearing loss “hearing aids needed now”,taste diminished, photo-sensitivity and loose stools. It should be noted I am already disabled due to a neck surgery that collapsed in 2014 therefore, the increase in the tingling and numbness in my arms, hand and finger was chalked up to the existing nerve damage.

July 2018 a severe migraine headache had me at the hospital inpatient, the neurologist diagnosed my photo sensitivity as migraines. What they did not tell me, my brain scan showed an empty sella.

Around August to September 2018 my right rib stomach area began causing pain. My weight had went from 185 to 155 and the list of problems and symptoms is continuing to grow and I was beginning to lose track of what was what anymore. All I know is no one knew what was wrong with me. By Christmas 2018 I end up in a pancreatic type attack in the hospital in severe pain unable to eat or drink. And by the end of my stay developed jerks of my arms and legs.

The entire hospital experience in December was traumatic for me, I have never been treated so poorly by doctors and nurses. It was shocking! I have always been treated well by nurses and doctors but, this particular group was not having me. They caused me to suffer and I am continuing to suffer as a result. This will be addressed later…

January thru March 2019 the jerks in arms and legs with weakness,heaviness and numbness in left arm progressed. I had shaking, hand tremors, confusion, leg tingling and numbness. Diagnosed with Dystonia in March 2019.

In December 2018 went to dermatologist for rash under breast per family doctor, dermatologist finds and sees swelling in my breast and under my arm (right side by rib). The core biopsy on both breasts, had benign findings however pre-cancer was found and a lumpectomy May 2019 was done. The pathology on the lumpectomy came back invasive lobular carcinoma.

And here we are…Considering the above information about my current health how healthy am I to be going through cancer treatment. And this is the reality of my situation today. I want to hear stage 1 just be ok with the surgery I had. This is my second cancer and I do not know what that means, it is on my list of questions to ask.

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